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Community & Events

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--  MAY IS PKU AWARENESS MONTH --

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Ontario PKU Day * Journe´e PCU de l'Ontario

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Camp PHEver


For more information visit: http://www.campphever.org/

 

Camp Connect - hosted by Georgia PKU Connect


For more information visit: www.GeorgiaPKU.org

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TN PKU Foundation Walk


For more information visit: www.TennesseePKU.org

PKU Organization of Illions  Annual Meeting

For more information visit www.PKUIL.org

 

Tennessee PKU Foundation Annual Meeting

For more information visit: www.TennesseePKU.org

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Community

Get connected with the Metabolic Community. Click on a link below to visit websites of a family support group near you!

US Groups

Children’s PKU Network www.pkunetwork.org
FOD Family Support Group www.fodsupport.org
National PKU News www.pkunews.org
National PKU Alliance www.npkua.org
NORD (National Organization for Rare Diseases) www.rarediseases.org
MSUD Family Support Group www.msud-support.org
Organic Acidemia Association oaanews.org
PKU World Link www.pkuworldlink.org

Canadian Groups

Canadian PKU and Allied Disorders www.canpku.org

Regional Groups

Georgia PKU Connect www.georgiapku.org
Florida PKU Foundation www.floridapku.org
The Mid-Atlantic Connection for PKU and Allied Disorders (MACPAD) www.macpad.org
Intermountain PKU and Allied Disorders www.go-ipad.org
PKU Organization of Illinois www.pkuil.org
Indiana PKU and Allied Disorders Association www.indianapku.org
Iowa PKU Foundation www.iowapkufoundation.com
Michigan PKU and Allied Disorders www.michigan-pku.org
Minnesota PKU Foundation www.mnpku.org
New England Connection for PKU and Allied Disorders www.necpad.org
Tennessee PKU Foundation www.tennesseepku.org
North Texas PKU Association www.ntxpku.org
Ryans PKU Foundation (Virginia) www.ryanspkufoundation.org
PKU and Allied Disorders of Wisconsin www.padow.org